The course will be run in seminar format with a maximum of 12 students. Students are expected to come prepared to actively participate in class sessions, based on readings and pre-recorded lectures.

Data are increasingly being collected digitally throughout our health care system. New sources and uses of data could help improve patient outcomes, lower health system costs, and improve health care provider productivity. They also present challenges: 1) New types of data, (e.g., from DNA testing) may increase risk to privacy. 2) Modern data analytics methods commonly link multiple datasets, sometimes from multiple jurisdictions, to achieve sample sizes appropriate for analytics needs. This creates challenges with data security and data flows (due to legislative restrictions). Further, data science approaches to analyses challenge current data minimization principles. 3) Many entities would like to monetize health data or use them for commercial purposes. The public are uneasy over this. Commercial interests must be balanced with public interests. 4) Governments and payers want access to data to develop better policies and allocate resources more effectively. 5) Health care organizations will need to share data more frequently to provide care to complex patients whose needs cannot be met by a single entity. 6) Patients are increasingly asking for access to their data for personal use. 7) Current policies and mechanisms for data governance struggle to meet these challenges, as there are no simple solutions.

The fundamental theme of this course is how the health care system can optimize and leverage the information collected to meet our evolving need for data to be used (and re-used) by and across organizations while meeting our legal and privacy obligations. We will consider both theoretical/conceptual and operational aspects of data quality, responsible use of data, and outcomes assessment using real-world applications. We will also provide case examples of initiatives leading the way in this new data environment. The course will identify emerging frameworks and technological solutions for solving key data governance issues.